tag:blogger.com,1999:blog-8849552989892823514.post7319962101449936035..comments2023-10-22T00:56:14.663-07:00Comments on I'm not my disease: Invisible disabilityLee @ sjogrens blog http://www.blogger.com/profile/15728445089750426476noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-8849552989892823514.post-35856141204298815392016-09-03T06:28:11.065-07:002016-09-03T06:28:11.065-07:00Thank you. You have said everything I have thought...Thank you. You have said everything I have thought over the past few months. It is as if it was MY voice. <br />One thing you left out....People who know nothing about this disease should definitely not try to diagnose it with something different.cottonx2https://www.blogger.com/profile/01925477998651309864noreply@blogger.comtag:blogger.com,1999:blog-8849552989892823514.post-63001018269546731402013-07-30T11:22:21.079-07:002013-07-30T11:22:21.079-07:00Hmm... that kind of disease really can confuse mos...Hmm... that kind of disease really can confuse most of the people around you. But I think you shouldn't be conscious with it; you don't have to explain. It's not your fault that you get that kind of illness. The only time that you have to prove your “disability”'s existence is when you applied for disability benefits. <br /><br />#Erminia@<a href="http://parmelelawfirm.com/about-us/attorneys/springfield/" rel="nofollow">ParmeleLawFirm.com</a> <br />Anonymoushttps://www.blogger.com/profile/03795669721295657388noreply@blogger.comtag:blogger.com,1999:blog-8849552989892823514.post-36762407382727728552013-02-19T09:45:55.460-08:002013-02-19T09:45:55.460-08:00Yes I have FIbro amongst other things Yes I have FIbro amongst other things Anonymoushttps://www.blogger.com/profile/11168265226669929429noreply@blogger.comtag:blogger.com,1999:blog-8849552989892823514.post-90987868497665938162013-02-19T09:43:56.187-08:002013-02-19T09:43:56.187-08:00Sounds a lot what I went through Have you seen a R...Sounds a lot what I went through Have you seen a Rhumatologist. Not saying it is Fibromyalgia but sounds like it.<br /> Anonymoushttps://www.blogger.com/profile/11168265226669929429noreply@blogger.comtag:blogger.com,1999:blog-8849552989892823514.post-73289657268115397052013-01-16T14:15:47.918-08:002013-01-16T14:15:47.918-08:00The cause of muscle weakness has been traced to th...The cause of muscle weakness has been traced to the transfer of information between nerve and muscle fibre, and to two ways in which data transfer can be impaired. One is if antibodies are binding to the muscle receptors and suppressing the incoming nerve signals, <br /><br /><br /><br /><br /><br /><a href="http://www1.salary.com/OK/Physician-Generalist-salary.html" rel="nofollow">Oklahoma doctors INTEGRIS baptist</a>healthgradeshttps://www.blogger.com/profile/08939725885738679026noreply@blogger.comtag:blogger.com,1999:blog-8849552989892823514.post-72876329321597360582012-11-28T00:32:55.447-08:002012-11-28T00:32:55.447-08:00Great article, check out mine over at Occupy Healt...Great article, check out mine over at Occupy Healthcare http://occupyhealthcare.net/2012/11/i-am-visible-my-disease-is-not/Michael (Deaderpool)http://limpingonastar.com/noreply@blogger.comtag:blogger.com,1999:blog-8849552989892823514.post-44255348499277263182012-03-20T14:31:04.444-07:002012-03-20T14:31:04.444-07:00I am one of the people who "do not get it&quo...I am one of the people who "do not get it". Let me tell you I get it more than you think. I get that I have to be the sole breadwinner, do most of the housework, pay for cleaners, do most of the stuff with the kids ,look after the gardenetc, listen to relentless complaints over decades and then get slagged off behind my back.There are better models for dealing with disabilities then are currently being engaged. And criticizing those who have supported you, behind their backs and to the whole world is not one of them. I guess your proccupation with your own condition means you have failed to deal with the fact that I am suffering a major disabling illness myself.But that doesn't count, does it?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8849552989892823514.post-31712360329189571642012-03-17T21:29:06.872-07:002012-03-17T21:29:06.872-07:00I appreciate you bring a voice to chronic invisibl...I appreciate you bring a voice to chronic invisible conditions. I understand the frustration all to well. I have motor planning disorder/dyspraxia (or about 4-5 other names for the same thing depending on whom you talk to). I do what I need to do to make things work for me, sometimes with judgement from the world cause I'm a young "healthy" college student. Great blog!Kathttps://www.blogger.com/profile/00069301265040853403noreply@blogger.comtag:blogger.com,1999:blog-8849552989892823514.post-21944836636417216292012-02-17T18:18:42.200-08:002012-02-17T18:18:42.200-08:00Thanks for writing about this. We need to bridge t...Thanks for writing about this. We need to bridge the gap between visible and invisible disabilities - together we will be stronger, have a louder voice.Lene Andersenhttps://www.blogger.com/profile/11223128667829847717noreply@blogger.comtag:blogger.com,1999:blog-8849552989892823514.post-73216610158796942072012-02-16T13:21:40.340-08:002012-02-16T13:21:40.340-08:00So great to connect with others through the carniv...So great to connect with others through the carnival, thanks for leaving these messages and food for thought - we are all so different yet so connected in certain ways. Blog on!I'm Not My Diseasehttp://notmydisease.blogspot.com.au/noreply@blogger.comtag:blogger.com,1999:blog-8849552989892823514.post-87667246484660554032012-02-15T11:46:02.178-08:002012-02-15T11:46:02.178-08:00My disabilities are mainly cognitive - processing ...My disabilities are mainly cognitive - processing any kind of information, reading, seeing hearing, smelling, tasting, touching are all difficult. So my disabilites are invisible too. Being awake is like trying to surf the net with a computer from 1995. <br /><br />Really there is almost no accessibility built into the world for this kind of thing.<br /><br />Sometimes it seems that people don't want to get it. But some do. You are not aloneAtomic Geographyhttps://www.blogger.com/profile/08433484071529026020noreply@blogger.comtag:blogger.com,1999:blog-8849552989892823514.post-28490760688659038382012-02-14T13:53:15.732-08:002012-02-14T13:53:15.732-08:00There are people on the Disability Blog Carnival t...There are people on the Disability Blog Carnival that understand invisible as well as visible disabilities - I have both myself, and I'm sure I'm not alone. I'm glad that you wrote this and gave the perspective from someone with invisible disabilities, because society needs to hear more of that perspective.GirlWithTheCanehttp://www.girlwiththecane.comnoreply@blogger.com