tag:blogger.com,1999:blog-88495529898928235142024-03-13T14:56:12.051-07:00I'm not my diseaseLee @ sjogrens blog http://www.blogger.com/profile/15728445089750426476noreply@blogger.comBlogger58125tag:blogger.com,1999:blog-8849552989892823514.post-52721445652888192532013-09-19T22:49:00.003-07:002013-09-19T22:49:34.167-07:00What is Sjogren's Syndrome?<span _mce_style="font-family: tahoma,arial,helvetica,sans-serif;" style="font-family: tahoma, arial, helvetica, sans-serif;"><span _mce_style="font-size: medium;" size="4"><span style="font-family: inherit; font-size: large;">Sjogren's Syndrome (pronounced show grins) is a condition in which the body recognizes its own tissues as foreign invaders and directs war against them. </span></span></span><br />
<span _mce_style="font-family: tahoma,arial,helvetica,sans-serif;" style="font-family: tahoma, arial, helvetica, sans-serif;"><span _mce_style="font-size: medium;" size="4"><span style="font-family: inherit; font-size: large;"></span></span></span><br />
<span style="font-size: large;"><span style="font-family: inherit;"><span _mce_style="font-family: tahoma,arial,helvetica,sans-serif;" style="font-family: tahoma, arial, helvetica, sans-serif;"><span _mce_style="font-size: medium;" size="4"><span style="font-family: inherit;">With Sjogren's the main tissues attacked are the exocrine glands - the sweat glands.</span> </span></span>The main symptoms are dry eyes and dry mouth but because it is an autoimmune condition the body can attack many other areas besides the sweat glands. </span><span style="font-family: inherit;">It can have more general effects such as fatigue and aching joints or muscles.</span></span><br />
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<a href="http://sjogrenssyndrome.blogspot.com.au/" target="_blank"><span style="font-family: inherit; font-size: large;">Lots of info on Sjogren's Syndrome</span></a>Lee @ sjogrens blog http://www.blogger.com/profile/15728445089750426476noreply@blogger.com0tag:blogger.com,1999:blog-8849552989892823514.post-14554651045867722232013-03-13T00:22:00.004-07:002013-03-13T00:22:52.335-07:00Have you ever thought about quitting sugar?<div class="separator" style="clear: both; text-align: center;">
<a href="http://4.bp.blogspot.com/-zxUwLlJigpM/UUAowjcmDcI/AAAAAAAAAXg/16fraRhUvGE/s1600/pd+parenting+file0002054422162.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="http://4.bp.blogspot.com/-zxUwLlJigpM/UUAowjcmDcI/AAAAAAAAAXg/16fraRhUvGE/s1600/pd+parenting+file0002054422162.jpg" height="150" width="200" /></a></div>
Added sweeteners pose dangers to health that justify controlling them like alcohol, argue Robert H. Lustig, Laura A. Schmidt and Claire D. Brindis, 3 scientists from the University of California. They suggest that sugar should be come with health warnings.<br />
In their findings published in the science journal <em>Nature</em> they say sugar is responsible for 35 million annual deaths worldwide due to changes in metabolism, blood pressure, hormones and the liver.<br />
Have you, like me been thinking of reducing your sugar intake or quitting it altogether? I have found a program I really like:<br />
The 21 Day Sugar Detox gives a step-by-step program, recipes, guidance including daily emails and an online community.<br />
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<span style="font-family: inherit;">If you experience any of the following you may benefit by removing sugar:</span><br />
<ul style="-webkit-text-size-adjust: auto; -webkit-text-stroke-width: 0px; background-color: white; border: 0px currentColor; color: #373737; font-family: "Helvetica Neue", Helvetica, Arial, sans-serif; font-style: normal; font-variant: normal; font-weight: 300; letter-spacing: normal; line-height: 24px; list-style: square; margin: 0px 0px 1.62em 2.5em; outline: 0px; padding: 0px; text-indent: 0px; text-transform: none; vertical-align: baseline; white-space: normal; word-spacing: 0px;">
<li style="border: 0px currentColor; font-family: inherit; font-style: inherit; font-weight: inherit; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;"><span style="font-family: inherit;">sugar cravings or carb cravings</span></li>
<li style="border: 0px currentColor; font-family: inherit; font-style: inherit; font-weight: inherit; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;"><span style="font-family: inherit;">energy spikes and dips throughout the day</span></li>
<li style="border: 0px currentColor; font-family: inherit; font-style: inherit; font-weight: inherit; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;"><span style="font-family: inherit;">fatigue, lethargy, depression or anxiety</span></li>
<li style="border: 0px currentColor; font-family: inherit; font-style: inherit; font-weight: inherit; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;"><span style="font-family: inherit;">brain fog, cloudy thinking, trouble concentrating</span></li>
<li style="border: 0px currentColor; font-family: inherit; font-style: inherit; font-weight: inherit; margin: 0px; outline: 0px; padding: 0px; vertical-align: baseline;"><span style="font-family: inherit;">hunger that goes from mild to intense very quickly</span></li>
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<span style="color: #373737;">See what else you get when you join this program all for just $21.00! </span><a href="http://6dbd3auahgjbax22i6mfu3wybr.hop.clickbank.net/" target="_top">Click Here!</a>
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Why not join me in getting healthier and feeling better? Let me know in the comments so we can all discuss it as we go.</div>
Lee @ sjogrens blog http://www.blogger.com/profile/15728445089750426476noreply@blogger.com1tag:blogger.com,1999:blog-8849552989892823514.post-10440616590926403062012-11-23T17:11:00.001-08:002012-11-23T17:11:07.201-08:00You can find me here<div class="separator" style="clear: both; text-align: center;">
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Hi, if you are wondering where I am you can find me at the following places:</div>
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<a href="http://goodnewsau.com/" target="_blank">Good News Network</a></div>
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<a href="http://1.bp.blogspot.com/-Ez2OoJz9dsM/ULAek4E6sEI/AAAAAAAAAXM/6v9OQbqyUgo/s1600/GNN+logo+badge.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://1.bp.blogspot.com/-Ez2OoJz9dsM/ULAek4E6sEI/AAAAAAAAAXM/6v9OQbqyUgo/s1600/GNN+logo+badge.jpg" /></a></div>
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<a href="http://sjogrenssyndrome.blogspot.com.au/" target="_blank">Sjogren's blog</a></div>
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<a href="http://healthzoo.blogspot.com.au/" target="_blank">Health Zoo</a></div>
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<br />Lee @ sjogrens blog http://www.blogger.com/profile/15728445089750426476noreply@blogger.com1tag:blogger.com,1999:blog-8849552989892823514.post-85371248873508264232012-08-09T22:34:00.001-07:002012-08-09T22:34:13.281-07:00Where I am visiting lately<div style="text-align: center;">
All the <a href="http://healthzoo.blogspot.com.au/" target="_blank"><strong><span style="color: black;">fascinating blogs</span></strong></a> at </div>
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<a href="http://3.bp.blogspot.com/-eXhr5D-M9yY/UCSSVuWVuNI/AAAAAAAAAUc/T71Nc2rHRHo/s1600/zoo+Picnik+collage.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="220" src="http://3.bp.blogspot.com/-eXhr5D-M9yY/UCSSVuWVuNI/AAAAAAAAAUc/T71Nc2rHRHo/s320/zoo+Picnik+collage.jpg" width="320" /></a></div>
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<a href="http://weirdwonderfulworldnews.tumblr.com/" target="_blank">beautiful world photos on tumblr</a></div>
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<a href="http://goodnewsau.com/" target="_blank">positive and good news snippets</a> at <span style="color: #073763; font-size: x-large;"><strong>GNN</strong></span></div>
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<a href="http://good-allthingsgood.blogspot.com.au/" target="_blank">uplifting quotes</a></div>
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<br /></div>Lee @ sjogrens blog http://www.blogger.com/profile/15728445089750426476noreply@blogger.com0tag:blogger.com,1999:blog-8849552989892823514.post-38179770783150315762012-05-29T03:36:00.001-07:002012-05-29T03:36:10.804-07:00We are all made up of many parts<div class="separator" style="clear: both; text-align: center;">
<a href="http://4.bp.blogspot.com/--FIxAmFyznM/T8SmUBIbn6I/AAAAAAAAASw/S9BDhoAyFp0/s1600/about+grief.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="http://4.bp.blogspot.com/--FIxAmFyznM/T8SmUBIbn6I/AAAAAAAAASw/S9BDhoAyFp0/s400/about+grief.jpg" width="306" /></a></div>Lee @ sjogrens blog http://www.blogger.com/profile/15728445089750426476noreply@blogger.com1tag:blogger.com,1999:blog-8849552989892823514.post-56860121758108385362012-03-17T21:18:00.024-07:002012-03-18T03:33:41.796-07:00Welcome to Disability Blog CARNIVAL # 82 which is titled FIRSTS<p>Firstly I would like to say that meeting all these people through their blogs was quite an experience.<br /><br />Winston Churchill said: "Courage is rightly esteemed<span style="font-size:130%;"> <strong>the first</strong></span> of human qualities...because it is the quality which guarantees all others."<br /><br />Courage is what all these bloggers have - for speaking out and blogging about the difficult topic of disability and all that goes with it and courage for what they go through. Oh yes, sometimes they make little of it and sometimes they present it with humour or anger but it is still courageous.<br /><br />Amongst these writers the “firsts” range from putting one’s child into 24 hour nursing care to realising that a blog was a great forum “The place where even the unforgivable is acceptable, where nothing is taboo.” <a href="http://gonnaeatworms.blogspot.com.au/2011/10/it-might-be-funny-if.html">Gonna eat worms</a><br /></p><ul><li>In her blog, Donna Thompson writes about disability, care in the community and our aging population and has rich material within her own four walls! <a href="http://donnathomson.blogspot.com/2011/12/new-years-reflection-for-al-etmanski.html">In this post she talks about many firsts</a> - we “moved our family across the world, my husband retired from the diplomatic corps after thirty-seven years, and we helped our adult son relocate from the family home into a residence with nursing care.”</li><li><a href="http://itsmyositis.blogspot.com.au/">it's myositis</a> wrote their first post about everyday life with their muscle disease in <a href="http://itsmyositis.blogspot.com.au/2011/02/just-about-today.html">Just About Today </a></li><li><a href="http://angryforareason.blogspot.com.au/">Angry for a Reason</a> tells us how <a href="http://angryforareason.blogspot.com.au/2011/02/my-ptsd-dog.html">SADIE WON 1ST PLACE FOR BEST RESCUE</a>: but that is only a small part of the story about a caring and intuitive pit bull dog and her owner.<br />Oh and a first attempt to do a solo paper and scissors zine, on <a href="http://www.angryforareason.blogspot.com/2012/02/disability-zine-callout.html">(dis)Abilities and Activism!</a> </li><li>Paula’s first post, back in 2006, was about her decision that her blog would be a discussion of key issues unique to the experience of "E." (epilepsy) <a href="http://epilepsy-paula.blogspot.com.au/2006/08/talking-about-epilepsy.html">“ issues that create the essence of one's experience with E.”</a></li><li>Penny L. Richards’ first post at <a href="http://disstud.blogspot.com.au/">Disability Studies, Temple U.</a> was April 16, 2005<a name="111370122135019026"></a> titled <a href="http://disstud.blogspot.com/2005/04/color-into-sound.html">“Color into sound”</a> For those who don’t know Temple U is Temple University in Philadelphia, USA, a world of Disability Studies, Geography, and History with contributors from coast to coast. They host this Disability Blog Carnival, the very first of which was hosted by Penny L. Richards was back in October 2006: It was <a href="http://disstud.blogspot.com/2006/10/disability-blog-carnival-1.html">Disability Blog CARNIVAL #1</a> “ to roundup recent disability-related blogging on a monthlybasis” with so many amazing links to blogs many of which are still going.</li><li><a href="http://aftergadget.wordpress.com/">aftergadget</a> said "A LOT has changed since I wrote this first post" : the aptly named <a href="http://aftergadget.wordpress.com/2009/12/26/beginning-after-the-end/">Beginning After the End</a> about death and survival “But this blog is not about numbers. It’s about surviving a devastating loss that most people are very sympathetic to, yet few really understand – the loss of a service dog”</li><li>Advocate For Yourself! is a first post of <a title="author profile" href="https://profiles.google.com/100378986956822446223">Deanna Williams </a>at Inspired by Ankyolosing Spondylitis” She saw 7 different specialists in 3 months and says “One of the most important lessons I learned throughout my journey with AS is to <a href="http://www.inspiredbyas.com/2011/11/advocate-for-yourself.html">advocate, advocate, advocate</a>.</li><li><a href="http://thefibromyalgiaadvocate.blogspot.com.au/2011/04/my-1st-post.html">The first post</a> by Survivor at The Fibromyalgia Advocate about starting her blog</li><li>Rheumatoid arthritis stories explains <a href="http://rheumatoidarthritisstories.blogspot.com.au/2011/11/what-is-arthritis.html">What Is Arthritis?</a> </li><li><a href="http://www.blogger.com/profile/11918601687946534172">Dave Hingsburger</a> from Rolling Around In My Head says in his first post in October of 2006 "This blog is about remembering as well as about imagining" Read more at <a href="http://davehingsburger.blogspot.com.au/2006/10/there-is-line.html">"There is a Line"</a> "<a href="http://davehingsburger.blogspot.com.au/2006/10/i-will-not-cross.html">I Will Not Cross</a>" ( in 2 parts)</li><li>Judy at <a href="http://www.blogger.com/profile/07141627284221873201">Peace Be With You</a> changed her blog from prose to poetry, and we visit<br />her first haiku triptych <a href="http://lapazconvos.blogspot.com.au/2009/10/todays-haiku.html">"Learning Bravery"</a> at this time.</li><li><a href="http://goodnewsau.com/good-news-australia.php">Health Zoo</a> is full of blogs relating to many different health conditions. The first post was about <a href="http://healthzoo.blogspot.com.au/2011/12/8-healthy-eatiing-gift-ideas.html">gift ideas</a> that would help wellbeing.</li><li>The first post at <a href="http://sjogrenssyndrome.blogspot.com.au/">Sjogren's blog</a> is about <a href="http://sjogrenssyndrome.blogspot.com.au/2011/03/diagnosis.html">diagnosis</a> and symptoms of Sjogren's Syndrome.</li><li><a href="http://heal-good.blogspot.com.au/">help autoimmune</a> where 'What i am Learning' was the 1st ever post in 2009.</li></ul><p><br />So please visit these bloggers and if you have a moment leave a comment on their post even just to say it was the <strong>first</strong> time you dropped by.<br /></p>Lee @ sjogrens blog http://www.blogger.com/profile/15728445089750426476noreply@blogger.com9tag:blogger.com,1999:blog-8849552989892823514.post-80648445137522773542012-02-24T13:05:00.005-08:002012-02-24T13:31:02.715-08:00Listening to books - not drowning<a href="http://4.bp.blogspot.com/-D-EUXl5v-_s/T0gAdBHxn3I/AAAAAAAAAR4/tHEIhNv_jYI/s1600/images%2B33.jpg"><span style="color: rgb(0, 0, 0);"></span><img style="margin: 0px auto 10px; width: 265px; height: 190px; text-align: center; display: block; cursor: pointer;" id="BLOGGER_PHOTO_ID_5712816625836728178" border="0" alt="" src="http://4.bp.blogspot.com/-D-EUXl5v-_s/T0gAdBHxn3I/AAAAAAAAAR4/tHEIhNv_jYI/s320/images%2B33.jpg" /></a><br /><div>I am not sinking in a sea of self pity ( let go of reading, beloved reading, wonderful books) I am listening to wonderful audio books. I am not drowning in despair ( I cannot tell a lie, I did for just a little while) My eyes no longer working as they once did have allowed me to listen. I am rejoicing in audio books - there is a wealth of them out there - and you can listen to them at any time you have a CD player. I am so happy I have found the audio book. ( <a href="http://notmydisease.blogspot.com.au/search/label/tinnitus">tinnitus does not stop you hearing</a>)</div><div> I have chosen <a href="http://astore.amazon.com/imnotmydisease-20">a selection of audio books to sell </a>if you too are interested in listening.</div><div> </div><div> </div>Lee @ sjogrens blog http://www.blogger.com/profile/15728445089750426476noreply@blogger.com0tag:blogger.com,1999:blog-8849552989892823514.post-53565522287747224292012-02-19T01:29:00.000-08:002012-02-19T02:35:32.352-08:00Hosting the Disability Carnival<p><span style="font-size:130%;">This is a first for me - hosting the carnival of bloggers. Oh I have joined in <a href="http://notmydisease.blogspot.com.au/2011/11/disability-studies-temple-u-disability.html">once</a> or <a href="http://notmydisease.blogspot.com.au/2012/02/invisible-disability.html">twice</a>, but never played host.<br /></span></p><p><span style="font-size:130%;">This carnival is all about <strong><span style="font-size:180%;">first</span>.</strong> </span></p><p><span style="font-size:130%;"><br />I wanted to make this easy to join in. We are such a diverse group. What we all have in common is blogging so I would love everyone to connect in this <a href="http://disstud.blogspot.com.au/search?updated-min=2012-01-01T00:00:00-05:00&updated-max=2013-01-01T00:00:00-05:00&max-results=6">Disability Carnival</a> with their <strong><span style="font-size:180%;">first blog post.</span></strong> (ordinal number </span><a name="first__1"><span style="font-size:130%;"> </span></a><span style="font-size:130%;">1: coming before all others in time or order; earliest; 1st: <em>the first post on your site)</em><br /><em></em><br />If you don't find this appealing then please pick a<strong> first</strong> to write about from the definitions below:</span></p><ul><li><strong><span style="font-size:130%;">'first things first'</span></strong><a name="first__53"><strong><span style="font-size:130%;"> </span></strong></a><br /><span style="font-size:130%;">important matters should be dealt with before other things: <em>I suggest we get our priorities right—first things first</em></span></li><li><strong><span style="font-size:130%;">'from the (very) first'</span></strong><a name="first__58"><span style="font-size:130%;"> </span></a><br /><span style="font-size:130%;">from the beginning: <em> she realized it from the first</em></span></li><li><strong><span style="font-size:130%;">'at first</span></strong><a name="first__23"><strong><span style="font-size:130%;"> </span></strong></a><span style="font-size:130%;"><strong>- at the beginning'</strong><br />in the initial stage or stages: <em>at first Hugo tried to be calm</em></span></li><li><span style="font-size:130%;"><strong>'first and last' </strong> everything considered; above all else; altogether: <em>First and last, it is important to know oneself</em></span></li><li><span style="font-size:130%;">Synonyms of <strong>first</strong>: earliest, foremost, inaugural, initial, leadoff, maiden, original, pioneer, premier, virgin</span></li></ul><p><span style="font-size:130%;">So if this is your inaugural attempt to join in the Disability Carnival what do you do?</span></p><p><span style="font-size:130%;">Just post here, in comments, the link to your first post ever or the post you have written about first.<em> </em>In your post please link back to here. Let everyone know you are joining in. Thanks. The closing date will be March 10. </span></p><em><em></em></em>Lee @ sjogrens blog http://www.blogger.com/profile/15728445089750426476noreply@blogger.com17tag:blogger.com,1999:blog-8849552989892823514.post-92079474810263974532012-02-16T22:49:00.000-08:002012-02-16T22:55:01.119-08:00Random Thoughts<a href="http://1.bp.blogspot.com/-fEV8BjIGQRI/Tz35Kkg_JCI/AAAAAAAAAQk/YM9A7_5wAkE/s1600/brain.jpg"><img style="margin: 0px auto 10px; width: 194px; height: 260px; text-align: center; display: block; cursor: pointer;" id="BLOGGER_PHOTO_ID_5709993862571697186" border="0" alt="" src="http://1.bp.blogspot.com/-fEV8BjIGQRI/Tz35Kkg_JCI/AAAAAAAAAQk/YM9A7_5wAkE/s320/brain.jpg" /></a><br /><div align="center">“<strong>He who conceals his disease cannot expect to be cured” </strong></div><strong><div align="center">Ethiopian Proverb</div></strong><div align="center"></div>Lee @ sjogrens blog http://www.blogger.com/profile/15728445089750426476noreply@blogger.com0tag:blogger.com,1999:blog-8849552989892823514.post-73199621014499360352012-02-05T01:20:00.000-08:002012-02-18T19:08:56.468-08:00Invisible disability<a href="http://1.bp.blogspot.com/-Cr16XYrfQeg/T0Bnu-6nnNI/AAAAAAAAARU/zTya4s0fx-o/s1600/invisible_man_tnb.png"><img style="margin: 0px 10px 10px 0px; width: 200px; height: 182px; float: left; cursor: pointer;" id="BLOGGER_PHOTO_ID_5710678384366296274" border="0" alt="" src="http://1.bp.blogspot.com/-Cr16XYrfQeg/T0Bnu-6nnNI/AAAAAAAAARU/zTya4s0fx-o/s200/invisible_man_tnb.png" /></a><br /><div>Sometimes it is hard living with an invisible disability. Only my specialists understand and actually call it a disability. I have no walking stick or wheelchair, I have no limp or twitch and to all I look well and fit and maybe just a bit overweight. The receptionist at the physio department does not get it, my kids don't get it and my husband does not get it. Even other people with disabilities do not get it as to join this months disability carnival I was expected to talk about my fave ""things that make the world accessible for us."<br />I guess the only thing I can say is<strong> ramps and lifts,</strong> at least they are the only things that make my world more accessible. You see I can walk (though not the same as before and I can no longer dance or get down on the floor with my grandchildren) but if I walk too far or up steps the next day I have to lie horizontal. I have a muscle disorder, a form of muscular distrophy that means all my muscles are extremely weak (some more than others).<br />I also think <strong>my main fave thing of accessibilty</strong> is my new laptop as I could no longer sit up at the computer due to muscle pain in my neck and shoulders and jaw. With the laptop I can lie down and connect with others all around the blogosphere and they cannot see me and do not know I am lying down and am in constant pain all over. This is how I become Not My Disease on a daily basis.<br />Here are the links to the Disability Blog Carnival:<br /><a href="http://davehingsburger.blogspot.com.au/2012/01/february-disability-blog-carnival.html">Rolling Around In My Head</a><br /><a href="http://disstud.blogspot.com.au/2012/02/disability-blog-carnival-80-is-up-now.html">Disability Blog Carnival #80 is up NOW!</a></div>Lee @ sjogrens blog http://www.blogger.com/profile/15728445089750426476noreply@blogger.com12tag:blogger.com,1999:blog-8849552989892823514.post-58524846131826528252011-12-31T16:06:00.000-08:002011-12-31T16:11:50.420-08:00Wipe the slate clean<p align="left"><a href="http://2.bp.blogspot.com/-6quK6ZuAnuQ/Tv-kH1rVmKI/AAAAAAAAAOY/RCmE7Vaosf8/s1600/23.jpg"><img style="TEXT-ALIGN: left; MARGIN: 0px auto 10px; WIDTH: 300px; DISPLAY: block; HEIGHT: 188px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5692448908594485410" border="0" alt="" src="http://2.bp.blogspot.com/-6quK6ZuAnuQ/Tv-kH1rVmKI/AAAAAAAAAOY/RCmE7Vaosf8/s320/23.jpg" /></a><span style="font-size:130%;">YEAH! It's a NEW YEAR!</span></p><br /><p align="left"><span style="font-size:130%;">What would you do if you had no pain or health concerns, no money constrictions?<br />Think for a moment...<br />What do you really want to do?</span> </p>Lee @ sjogrens blog http://www.blogger.com/profile/15728445089750426476noreply@blogger.com3tag:blogger.com,1999:blog-8849552989892823514.post-30209434736153878192011-12-28T01:22:00.000-08:002011-12-28T01:47:00.974-08:00AHHH! I've turned into my grandmother!<a href="http://3.bp.blogspot.com/-qv7_fmOFWd4/TvriUAj6tfI/AAAAAAAAANQ/U8cm6o6QTzY/s1600/granma.jpg"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 118px; FLOAT: left; HEIGHT: 164px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5691109912511952370" border="0" alt="" src="http://3.bp.blogspot.com/-qv7_fmOFWd4/TvriUAj6tfI/AAAAAAAAANQ/U8cm6o6QTzY/s320/granma.jpg" /></a><br />I wake up every morning and the first thing on my mind is a cup of tea.<br />I walk down stairs, get out my painkillers and make a delicious cuppa.<br /><br />When I was a child and I stayed over at my grandmother's house, I use to think it was peculiar that anyone would get up and take painkillers before the day even started.<br /><br />As a child I had no concept that pain was something that you could awake with every day. I had no concept that there were conditions that caused you to be in pain. I wish I had asked my grandma why she took them so I would know what pain it was? I often wonder, as I take my<a href="http://notmydisease.blogspot.com/2009/11/pain-pay-off.html"> <strong>painkillers</strong> </a>every morning, if she had the same <a href="http://notmydisease.blogspot.com/2010/12/well-you-got-me-on-bad-day.html"><strong>pains</strong></a> as me?Lee @ sjogrens blog http://www.blogger.com/profile/15728445089750426476noreply@blogger.com0tag:blogger.com,1999:blog-8849552989892823514.post-18756204093799100912011-12-26T14:17:00.000-08:002011-12-26T14:39:36.978-08:00Tinnitus embarrassing teens<a href="http://2.bp.blogspot.com/-NNzKmdUBO8s/Tvj1kGyrfJI/AAAAAAAAAMU/NbRBFNTGy5o/s1600/party.jpg"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 291px; FLOAT: left; HEIGHT: 218px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5690568129829895314" border="0" alt="" src="http://2.bp.blogspot.com/-NNzKmdUBO8s/Tvj1kGyrfJI/AAAAAAAAAMU/NbRBFNTGy5o/s320/party.jpg" /></a>I'm not much fun at parties<br /><br />Apparently I talk really loud at parties according to my teenagers. That is caused by the constant ringing in my ears. (It is really embarrassing to teenagers who don't give a damn that you have tinnitus or that they may get it soon if they keep listening to loud music on earpieces)<br />Standing at parties, in the festive season, increases my pain. You are not a very good party guest if you are in pain.<br /><br />Sitting for too long at parties makes me really stiff and I cannot get up out of the chair. This is not a good look in one so young; it seems to be accepted in frail 80 year olds but not young robust people.<br />I end up being the kitchen staff as constant doing and moving works best for my body. If I join in a conversation it is not very long before the pain makes me need to move on and I look quite rude and uninterested.<br />I use to love to dance at parties but now know that if I do my pain will be extremely bad for 3 days after.<br />I and many others in pain, may be the one offering you the hors d'oeuvres, making a pleasant comment and moving on. But only if the plate is not too heavy!Lee @ sjogrens blog http://www.blogger.com/profile/15728445089750426476noreply@blogger.com0tag:blogger.com,1999:blog-8849552989892823514.post-67778134386290007202011-12-20T16:38:00.000-08:002011-12-20T16:42:39.243-08:00I started this blog <a href="http://notmydisease.blogspot.com/2007/04/im-not-my-disease.html">back in April 2007</a> when I did not know the full extent of what was wrong with my body. I was searching and angry. So what has changed??<br />I am rushing out the door to do a hundred things for Christmas but will be thinking about this so I can post it here. In the meantime I hope your Christmas is not too hectic and you get to share the love.Lee @ sjogrens blog http://www.blogger.com/profile/15728445089750426476noreply@blogger.com1tag:blogger.com,1999:blog-8849552989892823514.post-62676879160649107352011-11-27T03:14:00.000-08:002011-11-27T04:40:05.364-08:00Disability Blog Carnival #77 is up NOW!The question is <strong>who inspired you?</strong><br /><br />in·spire <br />1. to fill with an animating, quickening, or exalting influence: <em>His courage inspired his followers</em>.<br />2. to produce or arouse (a feeling, thought, etc.): <em>to inspire confidence in others</em>.<br />3. to influence or impel: Competition inspired her to greater efforts.<br />4. to animate, as an influence, feeling, thought, or the like, does: <em>They were inspired by a belief in a better future. </em><br /><br />I am inspired by that person who is worse off than me and who just picks themselves up and gets on with it. The homeless guy selling 'The Big Issue' Magazine on the street corner in Sydney, Mahatma Gandhi who stuck to his ideals even when imprisoned, those who endured physical and mental and spiritual hardship like those at the concentration camps of Auschwitz. I suppose the theme here could be perserverance through adversity. <em>'Life is 10% what happens to us and 90% how we react to it.'</em> Dennis P. Kimbro<br /><br />Psychiatrists believe that Who inspires you most suggests not only what you are able to acknowledge within yourself, but also the scope of vision you hold as <strong>possible in your own life</strong>. From an article by Matt Laughlin.<br />I suppose the people who inspire me encourage me to perservere and carry on because I realize the difficulties that people endured are much more severe than the physical grumblings of my body.<br /><a href="http://disstud.blogspot.com/2011/11/disability-blog-carnival-77-is-up-now.html">Disability Studies, Temple U.: Disability Blog Carnival #77 is up NOW!</a>Lee @ sjogrens blog http://www.blogger.com/profile/15728445089750426476noreply@blogger.com0tag:blogger.com,1999:blog-8849552989892823514.post-86790780767169565912011-11-08T11:49:00.000-08:002011-11-08T11:57:56.403-08:00Coping with diseaseMost people would not cope with what I cope with on a daily level. They attend the doctor for a sore ... (Fillin the blank). I am sore all over. My stomach does not ache but that is about the only part. My breasts do not ache but the muscles above them do. Occassionally I feel the anger about my situation bubble to the surface but what does that achieve? I already attend every kind of doctor known to man and have searched for many years for help. I mostly accept this is my lot. It is a sad kind of acceptance.Lee @ sjogrens blog http://www.blogger.com/profile/15728445089750426476noreply@blogger.com1tag:blogger.com,1999:blog-8849552989892823514.post-64156863707988663632011-11-03T01:52:00.000-07:002011-11-03T02:03:34.924-07:00I'm not alrightSometimes I get so sick of pretending that everything is alright.<br />How are you? Good, good, How are you? Good thanks!<br />Well guess what I am not good. I am in constant pain and living on pain killers and still I feel pain and sometimes I can't even walk up the stairs and my hips ache all the time and the muscles in my upper arm are swollen, my eyes are dry and my tongue is burning, I drop things, I can't chop the veges without difficulty and everything seems like a struggle but I go on pretending that everything is alright.<br /><br />Why? Because people do not want to know.<br />Who am I pretending for? My family, especially my kids and my mother.<br />Hi, how are you? Fine thanks for asking.Lee @ sjogrens blog http://www.blogger.com/profile/15728445089750426476noreply@blogger.com2tag:blogger.com,1999:blog-8849552989892823514.post-28310635452207866932011-10-28T20:36:00.000-07:002011-10-28T21:40:06.793-07:00Eye check<a href="http://2.bp.blogspot.com/-8OCGlNaimXo/Tqt56cDryTI/AAAAAAAAAJw/LxFRUaqNg5M/s1600/macular%2Buntitled.bmp"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 185px; FLOAT: left; HEIGHT: 146px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5668758600846919986" border="0" alt="" src="http://2.bp.blogspot.com/-8OCGlNaimXo/Tqt56cDryTI/AAAAAAAAAJw/LxFRUaqNg5M/s320/macular%2Buntitled.bmp" /></a><br /><br /><br /><br /><div>I have a healthy macular, at least in my right eye. Because of Adies Tonic pupil in my left eye the camera could not see into it and the photograph was just grey on the screen. This was quite a shock in contrast to the orange image of my right eye next to it.</div><br /><br /><br /><div>My right eye is aching alot lately and I am not sure why. Just another thing to go to the doctor for.</div><br /><br /><div></div><br /><br /><div>I have also found a place called <a href="http://www.adiesyndrome.tk/"><strong>Pupillize</strong></a> where there are quite alot of others with Adie Tonic, apparently we are all one in a million.</div>Lee @ sjogrens blog http://www.blogger.com/profile/15728445089750426476noreply@blogger.com0tag:blogger.com,1999:blog-8849552989892823514.post-81677894474696839652011-10-03T15:51:00.001-07:002011-10-03T16:09:38.713-07:00Lately<div align="center"><a href="http://sjogrenssyndrome.blogspot.com/">Learning more <img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 203px; DISPLAY: block; HEIGHT: 156px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5659404601874454562" border="0" alt="" src="http://1.bp.blogspot.com/-eKjKsX_Y_Rc/Too-gCbwGCI/AAAAAAAAAJg/OFyc03mc6vM/s320/SS.jpg" />about Sjogren's</a><br /></div><br /><div align="center"><br /><div align="center"><a href="http://52daystoexplore.blogspot.com/"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 222px; DISPLAY: block; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5659403112300148050" border="0" alt="" src="http://1.bp.blogspot.com/-EI4fkGj6JLE/Too9JVVj9VI/AAAAAAAAAJQ/pJ5ERCgFNZM/s320/52_days_fly.jpg" /></a> <a href="http://52daystoexplore.blogspot.com/">Doing this</a><br /><br /><a href="http://babybeeshouse.blogspot.com/"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 165px; DISPLAY: block; HEIGHT: 139px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5659402517177541986" border="0" alt="" src="http://4.bp.blogspot.com/--NWR7P3sm40/Too8msVRpWI/AAAAAAAAAJI/ZWVgzs1_L6Y/s320/babybumblebee%2B125%2Bx%2B125.jpg" /></a><strong> Reading this<br /></strong>and<br /><br /><strong>Good News</strong><br /><br /><a href="http://goodnewsau.com/health.php"><strong><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 199px; DISPLAY: block; HEIGHT: 166px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5659404955099926994" border="0" alt="" src="http://4.bp.blogspot.com/-h7jmFcVP7pw/Too-0mTREdI/AAAAAAAAAJo/r6faMs_TYOY/s320/GNN%2Blogo%2Bbadge.jpg" /></strong></a> </div></div>Lee @ sjogrens blog http://www.blogger.com/profile/15728445089750426476noreply@blogger.com0tag:blogger.com,1999:blog-8849552989892823514.post-27954906960243970202011-09-11T03:20:00.000-07:002011-09-11T03:50:04.596-07:00What I did today<a href="http://1.bp.blogspot.com/-PaKGo_4vsj4/TmyPYiCUfxI/AAAAAAAAAI4/desO1-vkWKU/s1600/SS%2BwatreTN-20110814054730-fdae064a.jpg"><span style="font-size:130%;"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 200px; FLOAT: left; HEIGHT: 200px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5651049284059299602" border="0" alt="" src="http://1.bp.blogspot.com/-PaKGo_4vsj4/TmyPYiCUfxI/AAAAAAAAAI4/desO1-vkWKU/s320/SS%2BwatreTN-20110814054730-fdae064a.jpg" /></span></a><span style="font-size:130%;"><span style="font-family:trebuchet ms;"> learn share help </span></span><span style="font-family:courier new;font-size:180%;"><em>sweep cook </em></span><span style="font-family:verdana;font-size:180%;">visit smile kiss</span> <span style="font-family:courier new;font-size:130%;"><em>ask answer listen </em></span><span style="font-family:verdana;font-size:180%;">search find </span><span style="font-family:verdana;font-size:180%;"><em><span style="font-family:courier new;">clean iron</span></em> </span><span style="font-family:verdana;font-size:180%;">give away grow <span style="font-family:courier new;"><em>phone talk hope wish </em></span><span style="font-family:verdana;font-size:100%;">drive write read </span></span>Lee @ sjogrens blog http://www.blogger.com/profile/15728445089750426476noreply@blogger.com1tag:blogger.com,1999:blog-8849552989892823514.post-88499115349379133642011-08-17T15:31:00.000-07:002011-08-17T15:45:26.051-07:00"Changes, changes everywhere..<em>but if you just sit and stare...</em>
<br /><em>you stay the same!" </em>Children's song often sung on <em>PLAYSCHOOL</em>
<br /><em></em>
<br />Well I know I don't want to sit and stare and change is a constant. I have embraced the changes with only a few stamping and 'angry' days. I think I have done well but there is no one to praise me. So well done me!
<br />I actually enjoy my new limited life and am constantly busy (mostly on the internet) and usually feel there are never enough hours in the day and still lots of things I would love to acheive. I am thinking of an ebook, some ezine articles, a children's book including the illustrations, some online education with "proper qualifications", modifying yoga for chronic pain sufferers, finishing a guest blog, painting a picture, etc etc.
<br />I got momentarily sad this week when the specialist told me there was something wrong with my heart, because there is so much more I want to do. Okay it use to be dance and party and walk and travel - all things with my kinesthetic loving body (do you know about types?) - and yes I use to be a dancer but now I love my changed life. After all who wants to stay the same. So embrace the changes and by the way CONGRATULATIONS and WELL DONE to all you have done regarding not being defined by your disease. Please leave me a comment cause I would love to hear from you.
<br />Lee @ sjogrens blog http://www.blogger.com/profile/15728445089750426476noreply@blogger.com0tag:blogger.com,1999:blog-8849552989892823514.post-68159700788389073932011-08-14T00:01:00.001-07:002011-08-14T00:23:18.340-07:00The nicest complement<a href="http://2.bp.blogspot.com/-fjX0dpl8R7Y/Tkd0k7GdpuI/AAAAAAAAAHw/_ezU2NSYQCc/s1600/GNN%2Blogo%2Bbadge.jpg"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 109px; FLOAT: left; HEIGHT: 101px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5640605235993749218" border="0" alt="" src="http://2.bp.blogspot.com/-fjX0dpl8R7Y/Tkd0k7GdpuI/AAAAAAAAAHw/_ezU2NSYQCc/s320/GNN%2Blogo%2Bbadge.jpg" /></a>
<br />You may not know that I also write for <a href="http://goodnewsau.com/">GNN Good News Network </a>which is a positive news site about uplifting topics. Someone said the other day that whenever they wanted to feel good they went there - I know this is what we hope to achieve with the site but it was just so lovely to randomly hear it from someone.
<br />
<br />Pass on a genuine complement to someone because it does have a good effect.
<br />Lee @ sjogrens blog http://www.blogger.com/profile/15728445089750426476noreply@blogger.com0tag:blogger.com,1999:blog-8849552989892823514.post-59860566012115006232011-08-02T02:44:00.000-07:002011-08-02T05:11:37.511-07:00What disease?Or I should say what <strong>diseases</strong>; and yes they do cause me dis - ease.<br />The thyroid disease was diagnosed first - Hashimotos Thyroid which is low thyroid or <a href="http://thyroidlinks.synthasite.com/hypothyroid.php">hypothyroid</a> caused by the immune system.<br />I discovered I had Von Willebrand's next. It is a bleeding disorder that involves the blood clotting factor 8. Then I was told so many times I had <a href="http://myalgia.synthasite.com/">Fibromyalgia</a>.<br />Next came <a href="http://sjogrenssyndrome.blogspot.com/">Sjogren's Syndrome</a> due to the dry eyes and mouth.<br />Last, and I truly hope it is the last, is <a href="http://myositis.yolasite.com/polymyositis.php">Polymyositis</a> with Arthritis.<br />So now you know my diseases but you also know my attitude is that these conditions are not all there is to me they are only a very small part.Lee @ sjogrens blog http://www.blogger.com/profile/15728445089750426476noreply@blogger.com0tag:blogger.com,1999:blog-8849552989892823514.post-50676226061611718622011-06-21T15:16:00.000-07:002011-06-21T16:12:51.072-07:00Are you buckling under stress?<div align="left"><a href="http://1.bp.blogspot.com/-1Mkbxt4dE0c/TgEj4EFFj0I/AAAAAAAAAFQ/wfqLWhytCTo/s1600/Scream.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 254px; DISPLAY: block; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5620813256009813826" border="0" alt="" src="http://1.bp.blogspot.com/-1Mkbxt4dE0c/TgEj4EFFj0I/AAAAAAAAAFQ/wfqLWhytCTo/s320/Scream.jpg" /></a><span style="font-size:85%;"><br /><em>One of many versions of The Scream, painted in 1893 by Edvard Munch</em><br /><br /></span><br />Well there is a test, or many, if you would like to try one.<br /><a href="http://stresstest.net/"><strong>The one I did </strong></a>is free and takes about 4 minutes and you get the results straight away and you don't give your name or sign up.<br /><br />My overall emotional well-being, on a score of 1 to 5, is 3.44 which says I am stressed, almost very stressed.<br /><br />The Quality of Life Score measures my satisfaction with life, including overall self-esteem, health, friends, family and work. 2.9 extremely stressed.<br /><br />The Symptom Distress Score which measures my symptoms of depression, anxiety, and hostility says I am well adjusted - 4 out of 5.<br /><br />The Level of Functioning scores how well I get along in the community. 3.63 which says I am very stressed.<br /><br />Apparently, <a href="http://stresstest.net/">Behavioral Health Concepts</a>, say I would benefit from short-term counseling with a professional counselor and that "proper rest and exercise, relaxation strategies, and religious faith" also contribute to emotional well-being. </div><br /><div align="left"></div><br /><div align="left">What this all says is while I am not my disease it obviously has a big effect on my stress levels because it is the thing in this whole measuring that I can deal with but not "fix" (I have an incurable disease).</div>Lee @ sjogrens blog http://www.blogger.com/profile/15728445089750426476noreply@blogger.com0tag:blogger.com,1999:blog-8849552989892823514.post-56032758977461451692011-05-25T02:04:00.000-07:002011-05-25T02:58:35.836-07:00Personality Test<a href="http://2.bp.blogspot.com/-S3kmk4tgbwI/TdzRF2gwnEI/AAAAAAAAAFE/-KkWZAfZO10/s1600/Oberon%25252C_Titania_and_Puck_with_Fairies_Dancing__William_Blake__c_1786.jpg"><img id="BLOGGER_PHOTO_ID_5610589134259264578" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 320px; CURSOR: hand; HEIGHT: 222px; TEXT-ALIGN: center" alt="" src="http://2.bp.blogspot.com/-S3kmk4tgbwI/TdzRF2gwnEI/AAAAAAAAAFE/-KkWZAfZO10/s320/Oberon%25252C_Titania_and_Puck_with_Fairies_Dancing__William_Blake__c_1786.jpg" border="0" /></a><br />Today I found out how the <a href="http://www.humanmetrics.com/cgi-win/JTypes1.htm">Myers-Briggs personality test </a>rated me. I was INFP - Introverted iNtuitive Feeling Perceiving - and in good company too - J.R. Tolkien, Albert Schweitzer, Audrey Hepburn, George Orwel and William Shakespeare to name but a few fellow idealists.<br />INFP's try to make the world a better place, are truly interested in others,often put the needs of others above theirs, always want to be growing in a positive direction, are creative and inspirational and dislike dealing with details and routine work. The list goes on and on and also <a href="http://www.personalitypage.com/html/INFP_car.html">suggests careers </a>of Writers,Counselors, Social Workers, Teachers, Psychologists, Psychiatrists, Musicians and Religious Workers.<br /><br />Interestingly I have been a teacher for over 20 years and at university I studied social work, psychology and ancient indian religion. I also love writing for my blog and <a href="http://goodnewsau.com/"><strong>website</strong></a>.<br /><br /><br />The Myers-Briggs is a test which combines Carl Jung's ideas of personality types of Extraversion - Introversion, Sensing - Intuition, Thinking - Feeling with Isabel Briggs-Myers idea of Judging - Perceiving.<br />I answered the 72 yes/no questions quite quckly without much thought and got a score straight away.<br /><br /><em>PAINTING is of Shakespeare's play A Midsummer Night's Dream. It is Titled: "Oberon, Titania and Puck with Fairies Dancing" by William Blake. c.1786 from the art history archive. </em>Lee @ sjogrens blog http://www.blogger.com/profile/15728445089750426476noreply@blogger.com0