Eye check

I have a healthy macular, at least in my right eye. Because of Adies Tonic pupil in my left eye the camera could not see into it and the photograph was just grey on the screen. This was quite a shock in contrast to the orange image of my right eye next to it.

My right eye is aching alot lately and I am not sure why. Just another thing to go to the doctor for.

I have also found a place called Pupillize where there are quite alot of others with Adie Tonic, apparently we are all one in a million.

Lately

Learning more about Sjogren's

Doing this

Reading this
and

Good News

What I did today

learn share help sweep cook visit smile kiss ask answer listen search find clean iron give away grow phone talk hope wish drive write read

"Changes, changes everywhere..

but if you just sit and stare...
you stay the same!" Children's song often sung on PLAYSCHOOL

Well I know I don't want to sit and stare and change is a constant. I have embraced the changes with only a few stamping and 'angry' days. I think I have done well but there is no one to praise me. So well done me!
I actually enjoy my new limited life and am constantly busy (mostly on the internet) and usually feel there are never enough hours in the day and still lots of things I would love to acheive. I am thinking of an ebook, some ezine articles, a children's book including the illustrations, some online education with "proper qualifications", modifying yoga for chronic pain sufferers, finishing a guest blog, painting a picture, etc etc.
I got momentarily sad this week when the specialist told me there was something wrong with my heart, because there is so much more I want to do. Okay it use to be dance and party and walk and travel - all things with my kinesthetic loving body (do you know about types?) - and yes I use to be a dancer but now I love my changed life. After all who wants to stay the same. So embrace the changes and by the way CONGRATULATIONS and WELL DONE to all you have done regarding not being defined by your disease. Please leave me a comment cause I would love to hear from you.

The nicest complement

You may not know that I also write for GNN Good News Network which is a positive news site about uplifting topics. Someone said the other day that whenever they wanted to feel good they went there - I know this is what we hope to achieve with the site but it was just so lovely to randomly hear it from someone.

Pass on a genuine complement to someone because it does have a good effect.

What disease?

Or I should say what diseases; and yes they do cause me dis - ease.
The thyroid disease was diagnosed first - Hashimotos Thyroid which is low thyroid or hypothyroid caused by the immune system.
I discovered I had Von Willebrand's next. It is a bleeding disorder that involves the blood clotting factor 8. Then I was told so many times I had Fibromyalgia.
Next came Sjogren's Syndrome due to the dry eyes and mouth.
Last, and I truly hope it is the last, is Polymyositis with Arthritis.
So now you know my diseases but you also know my attitude is that these conditions are not all there is to me they are only a very small part.

Are you buckling under stress?

One of many versions of The Scream, painted in 1893 by Edvard Munch


Well there is a test, or many, if you would like to try one.
The one I did is free and takes about 4 minutes and you get the results straight away and you don't give your name or sign up.

My overall emotional well-being, on a score of 1 to 5, is 3.44 which says I am stressed, almost very stressed.

The Quality of Life Score measures my satisfaction with life, including overall self-esteem, health, friends, family and work. 2.9 extremely stressed.

The Symptom Distress Score which measures my symptoms of depression, anxiety, and hostility says I am well adjusted - 4 out of 5.

The Level of Functioning scores how well I get along in the community. 3.63 which says I am very stressed.

Apparently, Behavioral Health Concepts, say I would benefit from short-term counseling with a professional counselor and that "proper rest and exercise, relaxation strategies, and religious faith" also contribute to emotional well-being.

What this all says is while I am not my disease it obviously has a big effect on my stress levels because it is the thing in this whole measuring that I can deal with but not "fix" (I have an incurable disease).

Personality Test

Today I found out how the Myers-Briggs personality test rated me. I was INFP - Introverted iNtuitive Feeling Perceiving - and in good company too - J.R. Tolkien, Albert Schweitzer, Audrey Hepburn, George Orwel and William Shakespeare to name but a few fellow idealists.
INFP's try to make the world a better place, are truly interested in others,often put the needs of others above theirs, always want to be growing in a positive direction, are creative and inspirational and dislike dealing with details and routine work. The list goes on and on and also suggests careers of Writers,Counselors, Social Workers, Teachers, Psychologists, Psychiatrists, Musicians and Religious Workers.

Interestingly I have been a teacher for over 20 years and at university I studied social work, psychology and ancient indian religion. I also love writing for my blog and website.


The Myers-Briggs is a test which combines Carl Jung's ideas of personality types of Extraversion - Introversion, Sensing - Intuition, Thinking - Feeling with Isabel Briggs-Myers idea of Judging - Perceiving.
I answered the 72 yes/no questions quite quckly without much thought and got a score straight away.

PAINTING is of Shakespeare's play A Midsummer Night's Dream. It is Titled: "Oberon, Titania and Puck with Fairies Dancing" by William Blake. c.1786 from the art history archive.

You see, you cannot see.

This is not my disease - it does not belong to me - I'm not my disease

You cannot see what is going on inside my head.
You cannot see what is going on inside my body.
I see this as a plus - all good.
This way at least if you meet me in the street you will not know.
I can pretend, keep up appearances.
You see I am not my disease.

Oil on canvas by Portrait of a Blind woman by Diego Velázquez

Disease by Dean Rands

It tears me apart to say the words
To think the truth for just a second
Because then it's real - not a lie
And I'll have no choice but to forever cry

But still it's something I must face
And I must fight - win or lose
Because it's there - inside of me
Hidden in my skin - hard to see

I'm truly scared of what could be
Of what lurks beneath my skin
It may be hard for you to know
Thats because I cover it with a show...

Please read the rest of this 18 year olds poem here at a poetry community site called Poems and Quotes.
P.S. Dean. I tried to find you, even tried to register so I could get your okay but could not??? Hope it is okay?