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Wednesday, June 23, 2010

The wheels turn slowly


Yes, I have a diagnosis, of sorts - inflammatory myositis...possibly polymyositis but I am still in limbo land. The prednisone - 1st line drug in myositis and many other autoimmune conditions - did not work according to my rheumatologist. I'm not sure if I agree as the large muscle mass above my right knee has miraclously disappeared after years. The rheumy did not know this and she went by CPK and muscle strength and muscle pain which had not changed enough.
(The prednisone had side effects even after 2 weeks - my eyes were a bit blurred and dry, I could not get to sleep for hours, I was very hungry all the time and on the last few days my hair seemed to be falling out more than normal)

So what did she recommend? Pain medication, which I have been living on for years and physiotherapy. My problem is I still cannot get into physiotherapy at my local hospital and I am still on the waiting list. This is very frustrating to me as after having a muscle biopsy and being given a diagnosis I am still not doing a thing different than before my diagnosis. Well I suppose I am doing one thing which is to learn a bit about Myositis and contacting others who have it. Please comment here if you do also have one of the forms of Myositis as I would love to hear from you.

10 comments:

江婷 said...

一棵樹除非在春天開了花,否則難望在秋天結果。.................................................................

江婷 said...

Pay somebody back in his own coin.................................................................

義珊義珊 said...

成熟,就是有能力適應生活中的模糊。.................................................................

登山登山 said...

人生是故事的創造與遺忘。............................................................

宥妃宥妃 said...

向著星球長驅直進的人,反比踟躕在峽路上的人,更容易達到目的。............................................................

江冠彭珮李佳宏陽筠 said...

人不可以求其備,必捨其所短,取其所長............................................................

chen said...

及時行樂-快樂不需要理由..................................................................

許紀廷 said...

文章是心情的反應~~祝妳天天寫的都是讓人開心的好文章哦!!............................................................

@GNN said...

感谢你所有的有趣的评论

@GNN said...

GOOGLE TRANSLATION:
Jiang Ting said ...
A tree in spring bloom, otherwise difficult to look in the fall results. ...............................................
June 26, 2010 2:18 AM

Jiang Ting said ...
Pay somebody back in his own coin .........................................
June 29, 2010 6:45 AM

Justice Shan Yi Shan said ...
Mature, is the ability to adapt to life in the fuzzy. ................................
July 3, 2010 1:37 AM

Mountaineering Mountaineering said ...
Life is the story of the creation and oblivion. .................................................. ..........
July 7, 2010 7:39 AM

Yu-Fei Yu-Fei said ...
Toward the planet long drive straight into the people, is inversely proportional to the stoppage in the Gap road, easier to achieve their goals. .................................................. ..........
July 9, 2010 6:36 PM

Jiang the crown Peng Pei Lijia Hong Yang Jun said ...
Who can not find the prepared, will house its short, whichever is director ................................ ..........................
July 11, 2010 6:14 PM

chen said ...
Carpe diem - happy do not need a reason ....................................... .......................
July 11, 2010 6:14 PM

Xuji Ting said ...
Article is the mood of the reaction ~ ~ Zhuni every day are fun to write a good article! ........................ ..........
@ GNN said ...
Thanks for all your interesting comments